OMG !!! What am I ?

off-topic | experience
This is not like any normal post here. Normally I would be here for fun, for new ideas, and for arousal. Tonight I find myself in a really strange mood. I have had a few too many drinks. I just might end up regretting posting this. But at the moment I have an overwhelming urge to express myself.

A few weeks ago yet another relationship ended and once again I heard for just one time too many that I was some sort of weird unnatural freak because I was constantly interested in sex, and always ready for it. For some reason this particular time it weighed heavily on me. I decided to check with my doctor just in case there was something to this.

She sent me for some blood tests and when the results came back she was somewhat worried about what seemed like impossibly high levels of both male and female hormones, so she referred me to an endocrinologist. Initially he seemed at a loss to explain it, but got me into a public hospital where all of a sudden every specialist under the sun seemed to want to be involved and I ended up having more tests, scans, biopsies, and examinations than I ever dreamed existed.

Now that all the results are back I find myself shocked and stunned and struggling to understand how this is all going to work out for me. I always knew I was different, perhaps even weird, although nobody ever likes to hear that, but I generally put much of that down to my Aspergers Syndrome. (For those that do not know, it is a sort of high functioning autism which affects the way I perceive and relate to everyone around me.) Anyway, it turns out I am much more weird than I ever imagined possible.

Firstly, I have a disorder which is normally found in men. The root cause is genetic. Instead of 46 chromosomes I have inherited 47. I have what they are calling XXY Chromosome Syndrome. It normally presents as a man (XY) having an extra X chromosome. In my case though the Y chromosome is somehow defective or deficient, so that even though it has caused some profound effects, it has not made me male. Well, not properly anyway.

My ovaries are quite abnormal and contain both ovarian tissue and testicular tissue. One ovary has eggs, and the one sample tested shows that these are infertile. This probably pretty well explains why my periods are irregular and very light. The testicular tissue is partly functional, and produces male hormones, but seems completely incapable of producing sperm, and even if it could there is no mechanism to do anything with it.

There is also a problem with the whole regulatory part of them. In a normal person hormones are only produced as they are needed, but in me this process does not switch off and it seems that I am producing both female and also male hormones at the maximum rate. This kind of hints at explaining some things like my hairiness, as well as kind of explaining my horniness. The doctors are convinced that by leaving this untreated I am putting lots of unnecessary strain on my heart and other systems, and leaving myself exposed to extremely higher risks of certain cancers and other nasty side effects. They are recommending that I should have a full hysterectomy and then go on HRT. That option terrifies me beyond belief.

The second option is to use medicines to lower my hormone levels and then to regularly check to allow dose adjustments and to carefully monitor for other related problems and side effects. I will be meeting with them again next Monday and at this stage I am pretty sure that this is my preferred option, at least for now.

In a sense it is comforting to know that there is a logical and medical reason behind all of this. In another way it has been very disturbing. I never imagined that I was ever anything other than fully female. Never!! Listening to specialists debating whether I was a true hermaphrodite was very hard to endure. I know I only have small breasts, and I know I have a boyish sort of shape generally, but in my mind at least there was never any doubt. My genitals seemed perfectly normal to me. Yes, my vaginal lips are most often enlarged and hanging out, but that just seems to be from arousal. In the same way my clit is larger than all the others I have encountered, but most of the time it is only that way from arousal anyway, but it is still clearly a clit, and not a penis. Regardless of my chemical composition I am still very much a female, at least in my mind.

I feel kind of stupid that I got to be 24 before I realized this was enough of a problem that I needed help. I have known for ages about my Aspergers. I just thought that because I related differently to people, and did not show my emotions in quite the usual way, that somehow that caused me to be not so easily satisfied sexually. I mean I could easily have orgasms, but I always wanted more. That is actually part of the reason I started coming here, to find a way of making the orgasms more intense thinking that would give me better satisfaction. In hindsight I guess I have known for ages that there was something wrong, but I just did not want to have to admit it. But I still never expected it would be anything like having male bits in me. How can you ever expect that?

I might not sound like it but I love my sexuality. I love sex when I can get it, and I love masturbating at other times. I just want to get to a place where I can go out anywhere and not have to take a plastic bag with spare knickers and liners, and not to need to constantly worry about protection from wet patches on my clothing. Where I no longer go home with people I do not even like, simply because I am so horny. Where I can get through an 8 hour work day without desperately wanting to duck into the toilets to masturbate. I still want to feel sexy, but I want to be able to control it, and not have it control me.

It concerns me greatly that this might not work. What if I do not feel sexy anymore? What if I do not want sex? Or do not like sex anymore? What if I feel differently about myself and do not like how I feel? What if .. ..? What if .. ..? What if .. ..? Honestly I am scared shitless. I feel so alone. Even more alone than earlier this year when my mother died. I have no idea what I want from writing this. I am just in a strange mood and somehow need to say all of this. I am not looking for more medical advice, or for sympathy. I guess I just need a voice. An outlet. And another drink or three.

Wow

Thanks for sharing--I hope it helped in some small measure. I have litte time to write anything at the moment (scratch that--I have zero time) but I would highlight one tiny piece of what you wrote--

"I am still very much a female, at least in my mind." Consider this. Gender identity is 100% in our minds. For most of us, our mental "gender identity" matches our anatomical and genetic gender but in cases where either it does not (gender identity disorder), or when anatomical or genetic gender is not so clearly defined (such as your situation) one's gender identity is *not* simply determined by what one sees in the mirror. It is determined by just what it is called--your identity. You identify as a woman. That need not change if your ovaries are wierd or you carry an extra chromosome that is a Y, or if you start taking hormonal treatments that change the levels of your current hormones and likely your appearance and mental/personality patterns as well or if you remove your uterus and ovaries with similarly large scale results. Your identity remains what it was and is and your pronouns are still her and she. Don't let anyone, including yourself, tell you different.

Also, just my 2 cents but be careful about seeking comfort in alcohol.

Medical questions

So of course there's also my medical interest--I hipe you won't mind a comment and a question--

"Firstly, I have a disorder which is normally found in men. The root cause is genetic. Instead of 46 chromosomes I have inherited 47. I have what they are calling XXY Chromosome Syndrome. It normally presents as a man (XY) having an extra X chromosome." So that's called Klinefelter's Syndrome but that's not what you have at all even though the genetics match it because of something abnormal about the Y chromosome you carry.

". . . it seems that I am producing both female and also male hormones at the maximum rate." So lots of estrogen and testosterone. Do you know what the pituitary hormones (LH and FSH) are doing? I imagine levels of those are very low?
littlemoon's avatar

Hang in there!

Sue, if you feel you are a woman, you ARE a woman. No one can take that away from you. I'm glad you're being careful about how to handle this. Like you, I would be very concerned about taking any step that is not reversible. What a shock! I hope you have friends and family around to support you through this time.

MJ is right that gender is independent of physical equipment. I have several transgendered friends and know what a trial it was for them not to have the body to match their innate gender.

Please hang in there and keep posting. We're here for you.

*lm*

Wow, what a situation to be in!

I can barely imagine the shock you must be feeling, finding out all this stuff at once! Please do take time to think before you make any decisions, and do what's right for you, not what you might feel pressured into by doctors, family, friends, etc.

Also feel lucky that you live in a country that has a functioning medical system (unlike the USA). You'll get the care you want and need, and it won't bankrupt you.

Is it possible to experiment with different options, try them, and find out what feels right? If you go on hormones, what happens if you decide to stop? Can you change them later?

Certainly, keep your gender identification as it is. You are who you are, and that won't change, and don't let anyone try to convince you otherwise. But it's good to take your health seriously though, and do what you need to in order to stay alive and healthy.

Thanks.

Firstly, and this should be a warning to all, *Do not post drunk.* I would not have said so much, and such personal stuff sober, and never in such a public place. The sooner this thread gets buried under countless others the happier I will be.

MJ: I usually would not drink like that. Although I sometimes enjoy a few nice drinks, it was a strange evening for me, and I did not enjoy the feeling of being so drunk, or of being so sick the next morning. The LH and SFH are both very low, the pituitary is not asking for more, but that does not stop production of estrogen and testosterone. Equally strange to me but in the opposite direction, my cortisol is quite high, and yet the ACTH is also elevated, and the specialists think that is to be expected for me.

To all who replied, thanks for your support. I hope you understand that this is something I would normally only discuss in a much more private setting. Only time will tell if I will want to continue this openly. Please understand if I prefer not to. Its still something of an emotional roller coaster.

I am trying to be positive. I am also trying to be careful, as well as trying to make the best decisions for me, and my health.

I don't know if I buy any of

I don't know if I buy any of this.
lou's avatar

Re: I don't know if I buy any of

Dude, seriously? You have the gall to write a post in which you stereotype prostitutes according to their ethnicity to a ridiculous degree and then come into somebody else's blog with a comment like this? Believable or not, I find it a hell of a lot more palatable than your prostitute stories. Call me old-fashioned, but I think if a guy is going to rent a woman's genitals the way he'd rent a car, he should at least have the decency to keep it to himself.

Whatever. I am so done with Tantalism, thanks to you. Racism and prostitution! I need to get the skank off my brain.

On target as ever, Lou

Thanks for pointing out the absurd irony of this post about "buying" the comments of others just a day or two after posting malarky. I was kindly chided by a friend on e-mail for "feeding the troll." I'm of the opinion that sometimes trolls need to be confronted a bit as you have so neatly done here. Sue, FWIW we've got your back. Smiling But while a little feeding from time to time may arguably be necessary, I hope you'll reconsider your decision to leave altogether because of the troll. As the saying goes, trolls come and trolls go but Tantalism is forever. Or maybe that's not actually a "saying" at all. But it should be.

MJ

P.S. I am so glad I bought this new flame retardant laptop cause it's comin' my way now fo sho!

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